Back in 2003, Christine Miserandino came up with the Spoon Theory to explain what living with a chronic illness is like. Since then, it's also been applied to neurodiverse people. Basically, spoons represent the energy—whether physical, mental, or emotional—that we have available at any moment. At any time, I might have ten spoons, but if I'm feeling mentally or emotionally drained, that can quickly drop to just one or two spoons. This has shown me how to respect my boundarie

Feeling Empowered in My Health Journey Now that I've been diagnosed with ACC and ASD, going to the doctor for my physical needs is way better. Before I knew what was going on, I never really got around to asking questions about my health or working well with the medical system. It was like I was just floating through appointments, not really sure what to ask or how to express my concerns. But now that I know what's going on, I feel so much more empowered! I've taken the time

Working While Disabled While everyone's experience having a DCC and working, or trying to work, is unique, this is my story. You know, it’s kind of wild how each person’s journey can be so different, yet we all share some common threads. I've touched on some of my past jobs in other posts, but let me tell you, every single job I ever landed came with its own set of challenges. I was always pretty good at selling myself during the interview process—like, I could charm the sock

Reasons for Writing This Blog My reason for writing this blog is several fold. First and foremost, I want to share my unique perspective as an adult living with Agenesis of the Corpus Callosum (ACC). This condition shapes my daily experiences and understanding of the world in ways that I believe are worth sharing. By opening up about my journey, I hope to shed light on the nuances of living with ACC, which may not be widely understood. Secondly, I aim to reach out to other ad

The Positives Social media definitely has its upsides, right? I mean, it's like this magical portal where I can connect with people who totally understand me and see a wild mix of opinions that I might never encounter in my everyday life. Seriously, I can soak up so much knowledge just by typing away at my keyboard, and it’s pretty awesome! Plus, there’s something so satisfying about expressing myself and getting creative with what I share. And let’s not overlook the practica

My First Connection One of the key things I did when I got my diagnosis was to look for others who were going through the same thing. The first people I connected with in the NODCC community were parents of a little kid with ACC. They were awesome and really helped me get to know this amazing group of folks dealing with DCCs. Meeting Renee So, I met my late friend Renee Rose Oliver one day. She had not only a DCC, but hydrocephalus and epilepsy. We initially connected onlin

Where do I start, hmm... Some people comment, “You can’t have ACC—you look like you’re doing so well.” My answer is: DCCs are often invisible disabilities. You usually can’t look at someone and immediately know how their brain works or what challenges they deal with every day. It affects me personally, even when it isn’t obvious to other people. Sometimes I may seem completely fine, but I could still be struggling to understand what someone means, keep up with a conversation