Having Attention Deficit Disorder is pretty common for those with a DCC. Sometimes the symptoms overlap between the two. A neuropsychologist once told me I had "ADD on steroids," which I found amusing. Medication can really make a huge difference, though it might take some trial and error to find the right one for you. Without meds, I feel like a balloon just floating and bouncing around aimlessly through daily life. But with my Vyvanse, things get way better. Some of the co

Feeling Empowered in My Health Journey Now that I've been diagnosed with ACC and ASD, going to the doctor for my physical needs is way better. Before I knew what was going on, I never really got around to asking questions about my health or working well with the medical system. It was like I was just floating through appointments, not really sure what to ask or how to express my concerns. But now that I know what's going on, I feel so much more empowered! I've taken the time

Finding Clarity in Diagnosis I've touched on this a bit before, but now I really want to dive in. Getting diagnosed with ACC at 46 was honestly a huge relief for me; it felt like someone finally handed me the missing piece of a puzzle that I had been struggling with for years. It was like, "Aha! This is why I’ve felt so out of sync with everyone else!" All those years of confusion and uncertainty just melted away as I started to connect the dots. I had spent so much time fee

I'm really grateful for a lot in 2026. I've got a place to live, food to eat, and a stability I didn't have when I was younger. Finding out I had ACC was probably the biggest turning point for me. I'm glad I realized I'm different, not less or broken. It was such a huge change that in many ways, I feel like a new person, or at least I see the world differently than I did years ago. The change, for one, was an internal one, not necessarily a change in my outer life (that would

Discovering My Neurodivergence Later in Life Hey there, fellow DCCers and neurodivergent friends! Let’s chat about something that’s been a real game-changer for me. So, I found out I have Agenesis of the Corpus Callosum when I was 46. Now, you might be thinking, “Why does that matter now since you’re older and have lived your life?” Well, let me tell you, that diagnosis was like a light bulb going off in my head. It was honestly the start of my life in many ways. Making Sens

My First Connection One of the key things I did when I got my diagnosis was to look for others who were going through the same thing. The first people I connected with in the NODCC community were parents of a little kid with ACC. They were awesome and really helped me get to know this amazing group of folks dealing with DCCs. Meeting Renee So, I met my late friend Renee Rose Oliver one day. She had not only a DCC, but hydrocephalus and epilepsy. We initially connected onlin

For about half of my 64 years, I experienced couch surfing or homelessness. Receiving my diagnosis felt like a lightbulb illuminating above me. I finally understood why I was different. Throughout my life, I believed my parents' claims that I was 'broken,' a 'misfit,' 'lazy,' or 'manipulative.' Truthfully, I did learn to manipulate my surroundings to survive, believing I lacked the personal power to change my circumstances. an MRI of my brain and a 3D image of a normal Corpus