Reasons for Writing This Blog My reason for writing this blog is several fold. First and foremost, I want to share my unique perspective as an adult living with Agenesis of the Corpus Callosum (ACC). This condition shapes my daily experiences and understanding of the world in ways that I believe are worth sharing. By opening up about my journey, I hope to shed light on the nuances of living with ACC, which may not be widely understood. Secondly, I aim to reach out to other ad

My First Connection One of the key things I did when I got my diagnosis was to look for others who were going through the same thing. The first people I connected with in the NODCC community were parents of a little kid with ACC. They were awesome and really helped me get to know this amazing group of folks dealing with DCCs. Meeting Renee So, I met my late friend Renee Rose Oliver one day. She had not only a DCC, but hydrocephalus and epilepsy. We initially connected onlin